Living with Lupus: Coping Strategies to Improve Your Quality of Life

Knowledge
Originally Published:
September 29, 2021
Updated:
March 28, 2025
Read Time:
4 min
Author:
Living with Lupus: Coping Strategies to Improve Your Quality of Life

What Is Lupus?

Lupus is a chronic autoimmune disease where the body’s immune system attacks healthy tissues by mistake. This can lead to inflammation, pain, and damage to joints, skin, kidneys, heart, and other organs. The most common type is systemic lupus erythematosus (SLE), but there are other forms, including:

  • Discoid Lupus – affects only the skin
  • Drug-induced Lupus – triggered by certain medications
  • Neonatal Lupus – a rare condition in newborns, usually temporary

Although lupus is a lifelong condition, it can be effectively managed with the right care, support, and daily strategies.

Common Lupus Symptoms

Because lupus can affect multiple systems in the body, symptoms may vary. However, common symptoms include:

  • Extreme fatigue
  • Joint pain and swelling
  • Skin rashes (especially a butterfly-shaped rash across the cheeks and nose)
  • Fever
  • Sensitivity to sunlight
  • Hair loss
  • Chest pain or shortness of breath
  • Brain fog or memory issues

Lupus symptoms often come in flares, meaning they can worsen for a period and then improve.

Coping with Lupus: Strategies That Make a Difference

Living with lupus presents both physical and emotional challenges. Here are helpful, research-backed ways to cope with lupus while maintaining your quality of life:

1. Build a Strong Support System

One of the most important aspects of managing lupus is surrounding yourself with people who understand and support you. This can include:

  • Family and friends who are informed about your condition
  • Support groups (online or in-person) with others who have lupus
  • Licensed mental health counselors for managing stress, anxiety, or depression

You don’t have to go through it alone—and connecting with others can reduce the emotional burden of chronic illness.

People in a lupus support group sharing personal experiences and coping strategies in a welcoming environment.
Support groups and open conversations help people with lupus feel understood and empowered in their journey.

2. Practice Stress Reduction Techniques

Stress can trigger lupus flares. Try to adopt calming routines such as:

  • Mindfulness meditation or deep breathing
  • Gentle yoga or tai chi
  • Journaling to process emotions
  • Nature walks or quiet time away from screens

Daily stress management can significantly reduce symptom severity and improve mental well-being.

3. Prioritize Rest and Energy Management

Fatigue is one of the most common lupus symptoms. Help your body by:

  • Getting 7–9 hours of quality sleep each night
  • Taking breaks throughout the day
  • Pacing your activities (don't try to do too much on good days)
  • Saying "no" when needed to avoid burnout

4. Create a Personalized Wellness Routine

Healthy lifestyle habits can reduce flares and improve immune function:

  • Anti-inflammatory diet rich in fruits, vegetables, whole grains, and lean proteins
  • Gentle exercise like swimming, walking, or stretching
  • Staying hydrated and limiting caffeine or alcohol
  • Avoiding sun exposure, wearing SPF and protective clothing outdoors

Talk to your doctor or a primary care provider to tailor a routine that works for your body.

5. Be Open with Employers or Educators

If you’re working or in school, being transparent about your condition allows you to ask for reasonable accommodations. You are protected under the Americans with Disabilities Act (ADA). Helpful accommodations might include:

  • Flexible work hours
  • Remote options
  • Reduced physical tasks
  • Extended deadlines or extra breaks

6. Know When to Seek Medical Help

Some lupus flares require medical attention, especially if they involve:

  • Chest pain
  • Trouble breathing
  • New rashes or ulcers
  • Sudden fatigue or swelling
  • Fever without an obvious cause

Stay in regular contact with your rheumatologist or internal medicine provider to adjust medications or treatment plans as needed.

Expert Lupus Care at BASS Medical Group

At BASS Medical Group, our dedicated team of specialists understands the complexity of lupus and offers personalized care to help you manage symptoms and thrive. Whether you need lab testing, treatment adjustments, or emotional support, we're here to help.

Schedule an appointment today or explore our services to find the care that fits your needs.

Medical Disclaimer: The information provided in this blog is for educational and informational purposes only and is not intended as medical advice, diagnosis, or treatment. BASS Medical Group does not endorse any specific tests, treatments, procedures, or opinions referenced in this content. Individual results may vary. Always consult with your physician or a qualified healthcare provider regarding any medical concerns or before making changes to your health regimen.